Children

The protest highlights the difficulties in caring for children with disabilities

Mothers protest in Sওo Catano Chamber. (Photo: Reproduction Viva ABC)

A protest held in the Sao Catano Chamber on Tuesday (14/06) during the session of the legislature, shows that parents of children with certain types of disabilities, especially those with autism, find it difficult to get the necessary multidisciplinary care for their children. The protest came after calls for a special commission to be set up at the Casa de lais to deal with the problems of persons with disabilities, but the proposal was rejected by the ruling majority.

Decorated with posters with phrases such as “Respect our children” and “Create commissions”, mothers and fathers were present in the chamber and displayed plates with their backs to MPs as a sign of disapproval. Opposition counsel Caesar Oliva (PSD), author of the petition, regrets the father of a disabled child and the argument used by a government colleague to reject the petition, saying it had a political motive. “It started during a public health hearing where we asked questions and the secretary (Regina Maura Jeton) agreed that a commission would be better to deal with these cases. Through a request from a commission and the government led the rejection of the request, “he explained.

According to Oliver, the community of persons with disabilities is a group of parents who have about 300 organized families and is not a political movement. “These mothers rebelled and protested. After that, it was agreed that we would use a commission that already exists and of which I am a member, a general commission to deal with health and we would proceed to a meeting with the Secretariat. We are going to propose a joint public hearing with the Secretariat of Education, Health and Persons with Disabilities, “said Oliva. For now, meetings and hearings have not yet been scheduled.

According to Oliver’s wife, Camilla Portella, the movement estimates that 450 families are on the waiting list for therapy in Sওo Catano alone. But the situation is not unique to Sao Catano, with Ribeirao Perez, Maua, Diadema and the mothers of Santo Andre also complaining about the lack of services on social networks.

Autism

Sandra Ferreira has organized a team of about 80 mothers of autistic children in Mendes, Diadema. Mother of a seven-year-old boy with ASD (Autism Spectrum Disorder). The team started just two months ago. “I met a mom who also has an autistic child and we formed a group that grew up and today we are about 80 years old. We were in the chamber and I even spoke to the Free Tribune, with which we were able to get approval. -Which is called the sunflower cord law, a cord that indicates that the person has an invisible disability. This is a very good law, because autistic people do not look like autistic people. But we have also made it clear that we need more, but we have not yet moved on to any other proposal, “he explained.

Dyadamer has an Apae (Association of Parents and Friends of the Exceptional), but not all people with ASD have access to the services provided by each child’s degree. “My son is seven years old and I pay for an insurance to have the necessary multidisciplinary therapy, but with this decision of the judiciary in the list of procedures, we do not know how it will turn out. Most mothers cannot afford health insurance and public services. Depending on who does not have this team, does not have a speech therapist, does not have adequate transportation.My son studies in the municipal network and has no assistant teacher for him.The city government sends them to the CAPS (Psychosocial Care Center), but there is no multidisciplinary service. “, Sandra points out.

What municipalities say:

Oh RD Contacted City Hall in the area about helping people with ASD.

Diadem

In the case of Diadema, the city government maintains that there is care for the autistic and other disabled. “Diadema has 72 specialized basic education teachers. However, all professionals in the education structure go through continuous training in different areas of their work, in the area. Last week, City Hall called in more than 10 special education teachers, in addition to 200 agents and 80 interns, to take over the office who make up the staff of support professionals. In healthcare, children with autism as well as the general public are served by the municipal network and the gateway to the system is the basic health unit. Currently, Diadema distributes 20 UBS (Basic Health Units) in all areas of the city. Also, the Diadema Psychosocial Care Network includes CAPS (Psychosocial Care Centers) – units specialized in multidisciplinary care, including CAPS InfantoJuvenil, not only for autism but also for traumatic events, “he said in a note.

Sao Ketano

São Caetano said it has special services. CTNEN (Center for Trauma and Neurosensory Stimulation Dr. Tatua Kawakami) diagnoses, clinically cares, and rehabilitates a variety of pathologies. The unit consists of a team of technicians, psychologists, occupational therapists, physiotherapists, psychomotorists, speech therapists, neuropsychologists, educational psychologists, nutritionists, nurses, social workers and doctors. Access is provided by the Basic Health Unit or USCA (Child and Adolescent Health Unit), which sends the child for specialized treatment. At CTNEN, the team issued the GAP (Authorization Guide for Specialized Procedures) and forwarded it to Apae (a service provider in this department for the municipality) for follow-up and rehabilitation specialized treatment.

In terms of education, the city of Sওo Catano reported that there are 445 students with ASD (Autistic Spectrum Disorder). “The care policy does not have a specific topic for students with autism, as it considers its target audience as a whole (children with disabilities, developmental disorders / autism spectrum disorder and high capacity / talent). We highlight here the specific services of specialized education offered to these audiences: specialized educational support in a versatile resource room, aimed at overcoming obstacles; Collaborative work with regular classroom teachers, aimed at making the curriculum accessible; Supporting professionals, caregivers figure, API (Early Childhood Assistant) and Intern (the first two aim for students without autonomy for food, hygiene and mobility; and the last aim for educational support in the classroom and other school space), says Palácio da Cerâmica. .

Maua

Maui City Hall says it provides special educational support to all children with disabilities (reported certificates) enrolled in the network, and has a special team to train educators with children. Developed work also includes observing children who show signs of disability and carrying appropriate referrals. According to the administration, there are 292 children listed on the municipal network with ASD reports. “In addition to specialized educational support and regular support teachers in the classroom, AAEIs (Auxiliary for Support to Inclusive Education) are available to assist in the care of these children. At Mauá, CAPS I (Child Psychosocial Care Centers) and CER IV (Special Rehabilitation Centers), which serve patients with ASD, allow families to participate in multidisciplinary groups, groups and conversation circles, “Maui City Hall details.

St. Bernard

The municipality of S সাo Bernardo says about 800 students in the municipal school system are enrolled with autism spectrum disorder. Management maintains a coherent policy of inclusion, including periodic training activities related to the subject, in addition to the trained team and adequate teaching material. “The Department of Education provides all the necessary support for the care of students, such as a multidisciplinary team consisting of a physical therapist, occupational therapist, psychologist, social worker, in addition to special care after school hours with specialist teachers. And speech therapists, who are involved with student development. According to the instructions of the technical team, there is special care and follow-up by a special team in addition to the caregivers who support the 3 children individually ”.

St. Andrew

Santo Andre maintains that it is governed by a national policy on special education. “In this opportunity to work, we would like to inform you that in addition to the inclusive educational offerings developed in the regular classroom, the network has a Multifunctional Resource Room (SEM) in the network that includes Post-School Specialized Educational Assistance (AEE) services. The space, equipped with equipment, furniture and educational and educational materials, is aimed primarily at providing access to learning and learning conditions for students with disabilities, ”said Santo Andre City Hall.

The Andreas administration further states that schools use accessibility budgets to acquire materials that are relevant to their needs, in a personalized way, to achieve items that are appropriate to the reality of each school group. As of May of this year, 784 autistic students had been admitted to the city’s municipal network.

In addition to the Specialized Educational Assistance (AEE) there are specialized educational support for Santo Andre traveling. , Multidisciplinary Technical Support Network Team, which contributes to school inclusion and educational development of students with disabilities.

“In the case of health care, access from primary to primary care with a multi-professional team. If necessary, the patient is referred to CER-IV (Reabilita), a service dedicated to the care of the intellectual, motor, hearing and visual impairment or CAPS IJ (Center for Child and Youth Psychosocial Care), complete the city of Santo Andre.

The municipalities of Ribeirão Pires and Rio Grande da Serra did not respond.

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