Mothers of autistic children are protesting the lack of care in Vitoria

The protest started at 2 pm and brought together about 20 families, many of whom had placards in their hands to demand action in the face of the situation.

| Photo: Priscilla de Brito Reis

A group of mothers of children with autism protested this Friday (10) in front of a health planning office in Vitoria, demanding lack of medical assistance for their children.

The protest began at 2pm and brought together about 20 families, many of whom have posters with phrases demanding action in the face of the situation. The disqualification of a clinic responsible for these services occurred the same week that the Superior Court of Justice ruled that health plans did not require participation in treatments and procedures that were not on the National Health Organization’s list of services.

During the protests, some mothers even met with health plan representatives to find a solution and find out when their children would be reunited with their respective therapies.

One of the organizers of the protest, acupuncturist Priscilla de Brito Reyes, 40, the mother of an autistic teenager, Pietro, 11, explained that families claim that children cannot survive without therapy and treatment. The clinic, run by Unimed Vitória, will only serve children with autism until July 22.

“Our other request is that the health plan that the clinic wants to refer us to has the same quality as the clinic that is currently providing services, does not reduce the level of training, qualifications and duration of therapy.” Priscilla.

Families claim that children cannot be left without therapy and treatment

Families claim that children cannot be left without therapy and treatment

| Photo: Fernanda Ferreira Amaral / Priscilla de Brito Reis

Also, the demonstration aims to ask families to continue taking care near their homes (those who are in the clinics of Laranjiras and Val Paraiso are continuing to receive the best treatment and those who are in the clinics around Fatima are being treated in the area).

According to housewife Fernanda Ferreira Amaral, 34, mother of a 3-year-old child with autism, the clinic was disrespected even before the decision of the Superior Court of Justice (STJ) on the verdict analyzing whether the clinic was a health operator. While the ANS (National Supplementary Health Agency) may not require payment for procedures that are not included in the list, health plans have blocked therapies already provided for children with ASD (Autism Spectrum Disorder) because they do not appear on the regulatory body’s list.

“Today there are an average of 150 children who are part of the clinic who were disrespected. We want to guarantee that they will continue the same treatment, thus avoiding the impact of skills. For an autistic child, consistency in therapy is crucial. We will all be treated with the same quality, “said Fernanda

According to Priscilla, Unimed reported that the clinic was called for disqualification.

“We know that it did not say to close the clinic, but to Unimed who requested de-accreditation. The health plan does not cite the real reason and they say it was the clinic that recognized itself. After today’s meeting, it was promised by Unimed.” Given that they will try to negotiate with the clinic “, explained the acupuncturist.

A new meeting is scheduled for next Tuesday (14) at the Secretariat for the Best Human Rights.

Priscilla further highlights that with the cessation of care, children suffer from both neurological and psychological development.

“With the inadequacy of this clinic, the children were severely affected, because we know that autistic children need a routine and take time and / or are not able to bond with anyone, thus leading to a significant regression. Unimed does not know which clinic will recognize, if Therapy and care have the same level of quality, if the new clinic is near our home and if the hours are the same.

The other end

Unimed Victoria

In a note, Unimed Vitoria made it clear that it had not requested that the aforementioned clinic be disqualified.

“For commercial reasons, the clinic mentioned above, which provides the best care, requested de-accreditation of the operator. The contract with this organization only expires in July of this year, therefore, it remains in force. Being paid. ”

The health plan further states that the care of autistic children, adolescents and adults dependent on ABA therapy is being continuously ensured.

“It is important to emphasize that the National Health Agency’s (ANS) list does not recommend ABA therapy, but Unimed Vitória understands that it is an important method. And it will continue.”

Happy Clinic

Clínica Felice is an interdisciplinary clinic where professionals in the fields of psychology, psychotherapy, speech therapy, occupational therapy and physiotherapy specialize in ABA (Applied Behavior Analysis) which assists most patients with Autism Spectrum Disorder (ASD) to 01. Years

In a note, the clinic responds that it needs to be followed by specialized professionals and that in most cases the treatment is intensive and intermittent, that is, the child spends a few hours in the clinic and there are no interruptions.

“We are in the process of de-accrediting health plans in general, because of the difficulty in disclosing the number of sessions for standard treatment of children in addition to the bureaucracy. Impossible to keep. “

He added that he supported and mobilized parents and the movement to provide ABA therapy to health plan beneficiaries, but explained that “on the other hand, we point out that corrections and alignments with managers and specialists are necessary. At the moment, we are looking for new partnerships, public and / or private, to continue the treatment. “

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